Girl with no facial bones

Birth deformities can make life a daily ordeal for children as survival can become next to impossible in some cases. But even at a young age some show extraordinary courage to defy everyone ruling out their chances of a normal life and manage to astonish everyone. A disorder called Treacher Collins Syndrome prevented 40 facial bones from developing leaving her eyes, mouth and nose displaced. But now doctors are unable to explain how she has lived to celebrate her ninth birthday and are crediting the will and care of parents for it. The girl suffers from a disorder affecting only one in people and has undergone eight surgeries to reconstruct her eyes, mouth and nose including one to stimulate motor functions. Although no one knows how long Vitoria can survive, the family has been standing by their daughter despite nasty comments about the appearance of the girl.
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What is Treacher Collins syndrome? Ask an 11-year-old

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Vitória Marchioli, girl born without a face, celebrates ninth birthday | Metro News

A miracle girl has defied the odds by reaching her ninth birthday after a rare condition meant she was born without a face. Doctors doubted she would survive her first few hours of life, refused to feed her and advised her family to start making funeral arrangements. After defying their predictions at two-days-old, she was transferred to a specialist unit where her condition was identified and a week later she was released to her family's care. Since then she's had eight surgeries to reconstruct her eyes, nose and mouth as well as stimulate her motor functions, most recently at Shriner's Hospital in Texas, USA. Parents Ronaldo and Jocilene, 39 and 43, are continuing to fundraise for more treatment in the hope it will give her a better quality of life.
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Girl born with no face defies all the odds and celebrates her ninth birthday

Victoria Dicken is no stranger to challenges. The year-old girl from Louisville has Treacher Collins syndrome. Treacher Collins syndrome is a rare genetic condition that affects the development of bones and other tissues in the face. Most people with the condition have underdeveloped facial bones, particularly cheek bones, and a very small jaw and chin.
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Like many year-olds, Jono Lancaster has a job he loves, a beautiful girlfriend and takes pride in his appearance. But unlike most young men, Jono has Treacher Collins syndrome, a genetic disorder that affected the way his facial bones developed while he was in his mother's womb. The condition, which is thought to affect up to one in 10, babies in the UK, means he has no cheekbones - so his eyes droop downwards - and he has problems with his hearing, so has a bone-anchored hearing aid. It has resulted in several operations, numerous hospital visits and his parents giving him up for adoption 36 hours after he was born.
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Comments
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